Living with Buschke Lowenstein tumor
A slow-growing, cauliflower-shaped tumor near the genitals or anus, caused by HPV.
Understanding Buschke Lowenstein tumor
It grows slowly into a bulky, cauliflower-shaped mass. It often spreads into nearby tissue and can cause damage. It is caused by certain types of human papillomavirus (HPV) and can be passed on through sexual contact. Diagnosis is based on imaging and a microscopic exam of a small piece of the tumor.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. Based on the summary, this is the main feature:
- Bulky, cauliflower-shaped growth near the genitals or anus
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with HPV Alliance
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
It is caused by specific types of human papillomavirus (HPV). Risk factors include a weak immune system, multiple sexual partners, alcoholism, and diabetes.
Also known as: anogenital verrucous carcinoma of buschke-lowenstein; anogenital verrucous carcinoma of buschke-löwenstein; buschke-löwenstein giant condyloma; gcbl; giant acuminate warts; giant condyloma acuminatum involving the prepuce and glans penis
Patient organizations
- HPV AllianceBuschke Lowenstein tumor · United States
You are more than your diagnosis
Perspectives from people navigating life with Buschke Lowenstein tumor.
Explore research for Buschke Lowenstein tumor
Explore actively recruiting Buschke Lowenstein tumor studies with HealthSpark.
Find actively recruiting studies for Buschke Lowenstein tumor with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
Powered by HealthSpark, our AI chat helper
I can help you find recruiting Buschke Lowenstein tumor studies. Enter a ZIP code, address or city below and I'll look within 50 miles.
Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
Get Signals for Buschke Lowenstein tumor
Stay in the loop with community stories and updates from medical researchers.
Create a living journal that talks back
HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Buschke Lowenstein tumor experiences more deeply and prepare for better conversations with your doctors and care team.
Your journal is private. Sharing your story publicly is a separate choice, made with Share your story above.