Skip to content
knowrare
HealthSignal
Your condition community

Living with Bronchopulmonary dysplasia of newborn

A long-term lung condition in babies, mostly born early with low birth weight.

Understanding Bronchopulmonary dysplasia of newborn

Bronchopulmonary dysplasia of newborn is a chronic lung condition that follows lung injury in treatment of respiratory distress in premature, low-birth-weight infants, or abnormal lung development in older infants.

It is seen in newborns and infants. Signs include fast breathing, a fast heart rate, and signs of breathing effort, such as the chest pulling in, grunting, and flaring nostrils.

Signs & symptoms

Symptoms vary from baby to baby. GARD lists these among the most common:

  • Breathing difficulty
  • Fast breathing and fast heart rate
  • Cough
  • Pauses in breathing (apnea)
  • Need for breathing support (assisted ventilation)
  • Premature birth

Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.

Diagnosis

  1. Talk with your doctor

    Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.

  2. See a specialist

    Specialists who may be involved include genetic specialists and lung and breathing specialists.

  3. Ask which tests can help

    Your care team will decide which exams and tests can confirm the diagnosis.

Care & treatment

Care team
Genetic specialists (geneticists); Lung and breathing specialists (pulmonologists)
Expert care
Ask about multidisciplinary care centers for rare conditions
Treatment
GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
Research
Clinical trials and observational studies may be options. See the research section below.

General information, not medical advice. Your care team makes the decisions.

Everyday life

Living with a rare condition is easier with support.

  • Connect with American Lung Association
  • Keep notes on symptoms, changes and questions for appointments
  • Ask about patient registries that help research
  • Look into financial aid and travel resources for care visits
Bring these questions to your next doctor visit
What kind of breathing support does my baby need, and for how long?
How will you monitor my baby's lungs as they grow?
What signs mean I should call the care team?

Quick facts

Symptoms usually startNewborn and as an Infant

It follows lung injury during treatment of respiratory distress in premature, low-birth-weight infants, or abnormal lung development in older infants. GARD also lists genetic changes but doesn't name a gene.

GeneticRespiratory

Also known as: bpd; bpd - bronchopulmonary dysplasia; bronchopulmonary dysplasia; chronic lung disease of prematurity; perinatal bronchopulmonary dysplasia; ventilator lung in newborn

Patient organizations

Source: NIH GARD · Bronchopulmonary dysplasia of newbornGARD ID 5962 · GARD page updated September 2026 · Plain-language summary by Know Rare; editorial review pending. General information, not medical advice.

You are more than your diagnosis

Perspectives from people navigating life with Bronchopulmonary dysplasia of newborn.

Explore the Bronchopulmonary dysplasia of newborn blog

Explore research for Bronchopulmonary dysplasia of newborn

Explore actively recruiting Bronchopulmonary dysplasia of newborn studies with HealthSpark.

HealthSpark

Find actively recruiting studies for Bronchopulmonary dysplasia of newborn with HealthSpark. Share your city to explore research near you.

  • Recruiting studies from ClinicalTrials.gov
  • Share your city to look for research near you
  • Eligibility is confirmed by the study team

Powered by HealthSpark, our AI chat helper

I can help you find recruiting Bronchopulmonary dysplasia of newborn studies. Enter a ZIP code, address or city below and I'll look within 50 miles.

Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.

Get Signals for Bronchopulmonary dysplasia of newborn

Stay in the loop with community stories and updates from medical researchers.

HealthStoryfor Bronchopulmonary dysplasia of newborn

Create a living journal that talks back

HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Bronchopulmonary dysplasia of newborn experiences more deeply and prepare for better conversations with your doctors and care team.

Start your journal

Your journal is private. Sharing your story publicly is a separate choice, made with Share your story above.