Living with Bronchiolitis obliterans with obstructive pulmonary disease
A lung disease with inflammation in the small air tubes and air sacs, causing shortness of breath and a dry cough.
Understanding Bronchiolitis obliterans with obstructive pulmonary disease
It can start at any time in life. It may be caused by viral infections, various drugs, and other medical conditions. If the cause is known, it is called secondary BOOP. In many cases, the cause is unknown, called idiopathic BOOP or cryptogenic organizing pneumonia.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Shortness of breath
- Dry cough
- Fever
- Low blood oxygen
- Airway blockage (obstructive lung disease)
- Lung and respiratory infections
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include lung and breathing specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Children's Interstitial Lung Disease Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Lung and breathing specialists (pulmonologists)
- Expert care
- Expert lists: Children's Interstitial Lung Disease Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Children's Interstitial Lung Disease Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
BOOP can be caused by viral infections, various drugs, and other medical conditions. In many cases, the cause is unknown.
Also known as: boop; bronchiolitis fibrosa obliterans; bronchiolitis obliterans; bronchiolitis obliterans syndrome; constrictive bronchiolitis; ob - obliterative bronchiolitis
Patient organizations
- Children's Interstitial Lung Disease FoundationBronchiolitis obliterans with obstructive pulmonary disease · United States
- American Lung AssociationBronchiolitis obliterans with obstructive pulmonary disease · United States
You are more than your diagnosis
Perspectives from people navigating life with Bronchiolitis obliterans with obstructive pulmonary disease.
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