Living with Bronchiolitis obliterans organizing pneumonia
A lung condition with inflammation and scarring that blocks small airways and air sacs.
Understanding Bronchiolitis obliterans organizing pneumonia
It is a form of idiopathic interstitial pneumonia (lung disease with no known cause). It can start at a variety of ages.
Signs & symptoms
Symptoms vary from person to person. GARD lists flu-like symptoms among the most common:
- Cough, often dry
- Fever
- Shortness of breath
- Tiredness (fatigue)
- Weight loss and loss of appetite
- Crackling sounds in the lungs
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include lung and breathing specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Children's Interstitial Lung Disease Foundation and Global Autoimmune Institute may keep lists of experts for this condition.
Care & treatment
- Care team
- Lung and breathing specialists (pulmonologists)
- Expert care
- Expert lists: Children's Interstitial Lung Disease Foundation, Global Autoimmune Institute
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Children's Interstitial Lung Disease Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
The exact cause is unknown (idiopathic).
Also known as: boop; boop - bronchiolitis obliterans organizing pneumonia; bronchiolitis obliterans organising pneumonia; cop; cryptogenic organising pneumonia; cryptogenic organising pneumonitis
Patient organizations
- Children's Interstitial Lung Disease FoundationBronchiolitis obliterans organizing pneumonia · United States
- Global Autoimmune InstituteBronchiolitis obliterans organizing pneumonia · United States
- American Lung AssociationBronchiolitis obliterans organizing pneumonia · United States
You are more than your diagnosis
Perspectives from people navigating life with Bronchiolitis obliterans organizing pneumonia.
Explore research for Bronchiolitis obliterans organizing pneumonia
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