Living with Bimanual synkinesia
A rare condition in which one hand or side of the body copies movements of the other, without other nervous system problems.
Understanding Bimanual synkinesia
Mirror movements that do not go away and continue into adulthood are considered abnormal. People with CMM have no other nervous system problems. It starts in infancy and childhood. Diagnosis is based on symptoms and may be confirmed by genetic testing.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Mirror movements of the hands
- Poor fine motor control
- Clumsiness
- Tiring easily
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists and genetic specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists); Genetic specialists (geneticists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
Changes in the RAD51 or DCC genes can cause CMM. In some cases the cause is unknown. It is usually autosomal dominant, rarely autosomal recessive, and not everyone with the change has the condition.
Also known as: familial congenital controlateral synkinesia; familial congenital mirror movements; hand mirror movements; hereditary congenital controlateral synkinesia; hereditary congenital mirror movements; isolated congenital controlateral synkinesia
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Bimanual synkinesia.
Explore research for Bimanual synkinesia
Explore actively recruiting Bimanual synkinesia studies with HealthSpark.
Find actively recruiting studies for Bimanual synkinesia with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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