Living with Bilateral striopallidodentate calcinosis
A condition with calcium deposits in blood vessels of the brain that can cause movement and mood or thinking changes in adulthood.
Understanding Bilateral striopallidodentate calcinosis
Deposits show on medical imaging, mostly in the basal ganglia (deep brain areas that help control movement). Movement and psychiatric or behavior problems usually begin in mid-adulthood and worsen over time. Severity varies, and some people have no symptoms.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Slow movements (bradykinesia) and stiffness
- Tremor
- Uncontrolled limb movements (choreoathetosis)
- Personality changes, anxiety, or psychosis
- Memory and thinking decline (dementia)
- Headache, dizziness (vertigo), or seizures
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists and genetic specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Dystonia Medical Research Foundation, Parkinson's Foundation and Parkinson & Movement Disorder Alliance may keep lists of experts for this condition.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists); Genetic specialists (geneticists)
- Expert care
- Expert lists: Dystonia Medical Research Foundation, Parkinson's Foundation, Parkinson & Movement Disorder Alliance
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Dystonia Medical Research Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
Changes in genes cause this condition. It can be inherited in an autosomal dominant or autosomal recessive way.
Also known as: basal ganglia calcification; basal ganglia degeneration with calcification; bspdc; cerebrovascular ferrocalcinosis; idiopathic basal ganglia calcification; pfbc
Patient organizations
- Dystonia Medical Research FoundationBilateral striopallidodentate calcinosis · United States
- Parkinson's FoundationBilateral striopallidodentate calcinosis · United States
- Parkinson & Movement Disorder AllianceParkinsonism · United States
You are more than your diagnosis
Perspectives from people navigating life with Bilateral striopallidodentate calcinosis.
Explore research for Bilateral striopallidodentate calcinosis
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