Living with Bilateral acute depigmentation of the iris
A rare eye condition with sudden loss of color in the iris in both eyes, light sensitivity, and eye discomfort.
Understanding Bilateral acute depigmentation of the iris
Pigment is released inside the eye and collects in the drainage angle. People usually have strong light sensitivity, blurred vision, a red eye, and eye discomfort or pain. It usually clears on its own. Cases often follow a flu-like illness, an upper respiratory infection, or use of the antibiotic moxifloxacin by mouth. A related form called BAIT has a higher risk of high eye pressure.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Loss of color in the iris
- Strong sensitivity to light (photophobia)
- Eye pain
- Blurred vision
- Red eye
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include eye disease specialists and genetic specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Eye disease specialists (ophthalmologists); Genetic specialists (geneticists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD lists genetic changes for this condition but doesn't name a gene. Cases often follow a flu-like illness, an upper respiratory infection, or oral moxifloxacin.
Also known as: acute bilateral depigmentation of iris; badi
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Bilateral acute depigmentation of the iris.
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