Living with Bifid nose
A condition in which the nose is divided into two parts, from a slight groove to a full split.
Understanding Bifid nose
It varies from a barely visible groove down the center of the nose tip to a full split of bone and cartilage, making two half noses. It is often seen with wide-set eyes and midline clefts of the lip. The airway is usually adequate. It can be present during pregnancy and at birth, and may occur with frontonasal dysplasia.
Signs & symptoms
GARD lists this main feature:
- Groove or split in the nose (bifid nose)
- Wide-set eyes
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include ear, nose, and throat specialists and genetic specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
World Craniofacial Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Ear, nose, and throat specialists (otolaryngologists); Genetic specialists (geneticists)
- Expert care
- Expert lists: World Craniofacial Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with FACES: The National Craniofacial Association and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
Changes in genes cause this condition. It has been seen as autosomal dominant and autosomal recessive. With frontonasal dysplasia, several inheritance patterns are reported.
Also known as: bifid nasal bridge; cleft nasal bridge; cleft nose; indentation or clefting of the nose; indented bridge of nose
Patient organizations
- FACES: The National Craniofacial AssociationBifid nose · United States
- World Craniofacial FoundationCraniofacial anomalies · United States
- Children's Craniofacial AssociationCraniofacial anomalies · United States
- myFaceCraniofacial anomalies · United States
You are more than your diagnosis
Perspectives from people navigating life with Bifid nose.
Explore research for Bifid nose
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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