Living with Benign breast phyllodes tumor
A rare, usually painless breast tumor that starts in connective tissue and grows quickly.
Understanding Benign breast phyllodes tumor
The name comes from the Greek word for leaf-like, which describes how it grows. These tumors are most common in women in their 30s and 40s, but any age can be affected. They are usually painless and tend to grow quickly but rarely spread outside the breast. Most are benign (not cancer).
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. It notes these tumors are usually painless and grow quickly.
- Painless breast lump
- Quick growth of the tumor
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include cancer specialists, maternal-fetal medicine specialists and women’s reproductive health specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Cancer specialists (oncologists); Maternal-fetal medicine specialists (pregnancy-related); Women’s reproductive health specialists (obstetricians / gynecologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with American Cancer Society and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the underlying cause is unknown.
Also known as: benign phyllodes neoplasm of breast; benign phyllodes neoplasm of the breast; benign phyllodes tumor of breast; benign phyllodes tumor of the breast; benign phyllodes tumour of breast; benign phyllodes tumour of the breast
Patient organizations
- American Cancer SocietyBenign breast phyllodes tumor · United States
- Breastcancer.orgBenign breast phyllodes tumor · United States
- CancerCareBenign breast phyllodes tumor · United States
- Susan G. KomenBenign breast phyllodes tumor · United States
- Young Survival CoalitionBenign breast phyllodes tumor · United States
You are more than your diagnosis
Perspectives from people navigating life with Benign breast phyllodes tumor.
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