Living with Balo concentric sclerosis
A rare form of multiple sclerosis with a large, tumor-like lesion in the brain, usually in adults.
Understanding Balo concentric sclerosis
It is also called tumefactive multiple sclerosis. Its signs can look like those of a brain tumor. It usually starts in adulthood. Symptoms often differ from other MS cases.
Signs & symptoms
GARD doesn't list a symptom list. The summary describes these features:
- Headaches
- Changes in thinking
- Confusion
- Speech problems
- Seizures
- Weakness
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Global Autoimmune Institute and National Multiple Sclerosis Society may keep lists of experts for this condition.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists)
- Expert care
- Expert lists: Global Autoimmune Institute, National Multiple Sclerosis Society
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Accelerated Cure Project and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
The cause of Baló concentric sclerosis is not known.
Also known as: balo disease; balo's concentric sclerosis; balos concentric sclerosis; baló concentric sclerosis; concentric demyelination; concentric sclerosis
Patient organizations
- Accelerated Cure ProjectBalo concentric sclerosis · United States
- Global Autoimmune InstituteBalo concentric sclerosis · United States
- Multiple Sclerosis Association of AmericaBalo concentric sclerosis · United States
- National Multiple Sclerosis SocietyBalo concentric sclerosis · United States
- Multiple Sclerosis FoundationBalo concentric sclerosis · United States
You are more than your diagnosis
Perspectives from people navigating life with Balo concentric sclerosis.
Explore research for Balo concentric sclerosis
Explore actively recruiting Balo concentric sclerosis studies with HealthSpark.
Find actively recruiting studies for Balo concentric sclerosis with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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