Living with Autosomal dominant nonsyndromic hearing loss 3A
An inherited hearing loss that slowly gets worse, starting with high-pitched sounds.
Understanding Autosomal dominant nonsyndromic hearing loss 3A
The hearing loss affects high-pitched sounds and can range from mild to profound. It can start before or after a child learns to speak. People with this condition have no other related medical findings.
Signs & symptoms
GARD describes this main feature:
- Hearing loss that slowly gets worse
- Trouble hearing high-pitched sounds
- Hearing loss ranging from mild to profound
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Hearing Loss Association of America may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: Hearing Loss Association of America
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Hearing Loss Association of America
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
It is autosomal dominant, so a change in one copy of a gene can cause it. GARD does not name a specific gene here.
Patient organizations
- Hearing Loss Association of AmericaAutosomal dominant nonsyndromic hearing loss 3A · United States
You are more than your diagnosis
Perspectives from people navigating life with Autosomal dominant nonsyndromic hearing loss 3A.
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