Living with Autoimmune hepatitis
A disease in which the immune system attacks liver cells and causes liver inflammation.
Understanding Autoimmune hepatitis
It likely results from a mix of autoimmunity, environmental triggers, and genetic predisposition. It occurs more often in females and can start at a variety of ages.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Belly pain
- Long-lasting tiredness
- Joint pain
- Depression
- Spider-like blood vessels on the skin (spider hemangioma)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include digestive system specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Autoimmune Association, Autoimmune Hepatitis Association and Global Autoimmune Institute may keep lists of experts for this condition.
Care & treatment
- Care team
- Digestive system specialists (gastroenterologists)
- Expert care
- Expert lists: Autoimmune Association, Autoimmune Hepatitis Association, Global Autoimmune Institute
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Autoimmune Association and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says it likely results from a combination of autoimmunity, environmental triggers, and a genetic predisposition.
Also known as: aih
Patient organizations
- Autoimmune AssociationAutoimmune hepatitis · United States
- Autoimmune Hepatitis AssociationAutoimmune hepatitis · United States
- Global Autoimmune InstituteAutoimmune hepatitis · United States
You are more than your diagnosis
Perspectives from people navigating life with Autoimmune hepatitis.
Explore research for Autoimmune hepatitis
Explore actively recruiting Autoimmune hepatitis studies with HealthSpark.
Find actively recruiting studies for Autoimmune hepatitis with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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