Living with Autoimmune enteropathy
A group of immune-related gut disorders that can cause severe diarrhea and poor absorption of nutrients.
Understanding Autoimmune enteropathy
In children it causes severe diarrhea and dehydration, with certain antibodies present. In adults it causes chronic diarrhea, poor absorption of nutrients (malabsorption), and weight loss.
Signs & symptoms
GARD doesn't list a symptom list for this condition, but its summary describes these features:
- Severe diarrhea
- Dehydration (in children)
- Chronic diarrhea (in adults)
- Poor nutrient absorption (malabsorption)
- Weight loss
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include digestive system specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Autoimmune Association may keep lists of experts for this condition.
Care & treatment
- Care team
- Digestive system specialists (gastroenterologists)
- Expert care
- Expert lists: Autoimmune Association
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Autoimmune Association
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says it is an immune-mediated condition marked by characteristic antibodies. It doesn't describe a specific cause here.
Also known as: immune-mediated protracted diarrhea of infancy; immune-mediated protracted diarrhoea of infancy; severe immune-mediated enteropathy
Patient organizations
- Autoimmune AssociationAutoimmune enteropathy · United States
You are more than your diagnosis
Perspectives from people navigating life with Autoimmune enteropathy.
Explore research for Autoimmune enteropathy
Explore actively recruiting Autoimmune enteropathy studies with HealthSpark.
Find actively recruiting studies for Autoimmune enteropathy with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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