Living with Autoerythrocyte sensitization syndrome
A rare condition with episodes of painful, unexplained bruising, mostly on the arms, legs, or face.
Understanding Autoerythrocyte sensitization syndrome
Multiple small purple bruises form, mostly on the arms, legs, or face, and may come with burning, redness, and swelling. Most people say the bruises appear on their own or some time after an injury or surgery elsewhere on the body. It usually appears in adults.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Painful bruising
- Small purple bruises (ecchymosis)
- Burning, redness, and swelling
- Bruising on the arms, legs, or face
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Skin, hair, and nail specialists (dermatologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Children's Skin Disease Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the cause of this condition is poorly understood.
Also known as: auto-erythrocyte sensitization syndrome; autoerythrocyte sensitivity disorder; autoerythrocyte sensitization; autoerythrocyte sensitization purpura; factitious purpura; gardner-diamond syndrome
Patient organizations
- Children's Skin Disease FoundationSkin diseases · United States
Broader rare-disease groups
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Autoerythrocyte sensitization syndrome.
Explore research for Autoerythrocyte sensitization syndrome
Explore actively recruiting Autoerythrocyte sensitization syndrome studies with HealthSpark.
Find actively recruiting studies for Autoerythrocyte sensitization syndrome with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
Powered by HealthSpark, our AI chat helper
I can help you find recruiting Autoerythrocyte sensitization syndrome studies. Enter a ZIP code, address or city below and I'll look within 50 miles.
Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
Get Signals for Autoerythrocyte sensitization syndrome
Stay in the loop with community stories and updates from medical researchers.
Create a living journal that talks back
HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Autoerythrocyte sensitization syndrome experiences more deeply and prepare for better conversations with your doctors and care team.
Your journal is private. Sharing your story publicly is a separate choice, made with Share your story above.