Living with Auditory neuropathy
A hearing condition in which sound enters the inner ear normally but the signal to the brain is not passed on properly.
Understanding Auditory neuropathy
It may cause mild to severe hearing loss and trouble understanding speech clearly. It can be linked to other conditions, such as Friedreich ataxia, Stevens-Johnson syndrome, Ehlers-Danlos syndrome, and Charcot-Marie-Tooth syndrome.
Signs & symptoms
GARD doesn't list a symptom list for this condition, but its summary describes these features:
- Mild to severe hearing loss
- Trouble understanding speech clearly
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Hearing Loss Association of America may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: Hearing Loss Association of America
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Hearing Loss Association of America
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the exact cause isn't fully understood. Many cases occur with no family history, but it runs in some families, which suggests genetic factors may play a role in some cases.
Also known as: ansd; auditory dys-synchrony; auditory neuropathy spectrum disorder
Patient organizations
- Hearing Loss Association of AmericaAuditory neuropathy · United States
You are more than your diagnosis
Perspectives from people navigating life with Auditory neuropathy.
Explore research for Auditory neuropathy
Explore actively recruiting Auditory neuropathy studies with HealthSpark.
Find actively recruiting studies for Auditory neuropathy with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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