Living with Atrophoderma of Pierini and Pasini
A rare skin condition with patchy dark or light areas that are slightly sunken.
Understanding Atrophoderma of Pierini and Pasini
The main sign is multiple irregularly shaped dark or light areas where the tissue under the skin has broken down, leaving a dent. Diagnosis is based on a clinical exam and skin biopsy. It usually appears in adults.
Signs & symptoms
GARD describes the main symptom as:
- Patchy dark or light skin areas
- Irregularly shaped patches
- Dents in the skin where tissue has broken down
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Scleroderma Research Foundation and National Scleroderma Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Skin, hair, and nail specialists (dermatologists)
- Expert care
- Expert lists: Scleroderma Research Foundation, National Scleroderma Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Scleroderma Research Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the cause of this condition is unknown.
Also known as: atrophoderma of pasini and pierini; idiopathic atrophoderma of pasini and pierini
Patient organizations
- Scleroderma Research FoundationAtrophoderma of Pierini and Pasini · United States
- National Scleroderma FoundationAtrophoderma of Pierini and Pasini · United States
- Children's Skin Disease FoundationSkin diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Atrophoderma of Pierini and Pasini.
Explore research for Atrophoderma of Pierini and Pasini
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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