Living with Atrophic lichen planus
A rare skin condition with pale bumps or patches that have a sunken center, often on the trunk and legs.
Understanding Atrophic lichen planus
Lichen planus is a condition that affects the skin and/or mouth. In the atrophic form, the center of each patch has broken-down (atrophic) tissue. The patches can appear anywhere but are most common on the trunk and legs, in skin that had classic lichen planus. It can occur at any time in life.
Signs & symptoms
GARD doesn't list specific symptoms for this condition, but its summary describes the main skin finding:
- Pale raised bumps (papules) or patches (plaques)
- Sunken, broken-down tissue at the center
- Most often on the trunk and legs
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Autoimmune Association may keep lists of experts for this condition.
Care & treatment
- Care team
- Skin, hair, and nail specialists (dermatologists)
- Expert care
- Expert lists: Autoimmune Association
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Autoimmune Association and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the exact cause of atrophic lichen planus is unknown.
Also known as: atrophic lp; lichen planus atrophicus
Patient organizations
- Autoimmune AssociationAtrophic lichen planus · United States
- Children's Skin Disease FoundationSkin diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Atrophic lichen planus.
Explore research for Atrophic lichen planus
Explore actively recruiting Atrophic lichen planus studies with HealthSpark.
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- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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