Living with Astroblastoma
A rare brain tumor made of glial cells, most often in the large upper part of the brain, mostly in children and young adults.
Understanding Astroblastoma
It can occur at any age but is most common in children and young adults. Signs depend on where the tumor is and how large it is. Because these tumors are rare, little is known about how they behave or how best to manage them.
Signs & symptoms
GARD says symptoms depend on the tumor's location and size. The most common are:
- Headaches
- Seizures
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists); Cancer specialists (oncologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Children's Brain Tumor Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: astroblastoma (morphologic abnormality)
Patient organizations
- Children's Brain Tumor FoundationAstroblastoma · United States
- National Brain Tumor SocietyAstroblastoma · United States
- Pediatric Brain Tumor FoundationAstroblastoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Astroblastoma.
Explore research for Astroblastoma
Explore actively recruiting Astroblastoma studies with HealthSpark.
Find actively recruiting studies for Astroblastoma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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