Living with Arthrogryposis due to muscular dystrophy
GARD does not yet have detailed information on this condition.
Understanding Arthrogryposis due to muscular dystrophy
GARD says it does not currently have detailed information about this condition. Its Information Specialists can help people find information and resources and can give individual support on a diagnostic journey.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Arthrogryposis Multiplex Congenita Support Inc. and Muscular Dystrophy Association may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: Arthrogryposis Multiplex Congenita Support Inc., Muscular Dystrophy Association
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Arthrogryposis Multiplex Congenita Support Inc. and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: congenital muscular dystrophy producing arthrogryposis; congenital muscular dystrophy, producing arthrogryposis
Patient organizations
- Arthrogryposis Multiplex Congenita Support Inc.Arthrogryposis due to muscular dystrophy · United States
- Muscular Dystrophy AssociationArthrogryposis due to muscular dystrophy · United States
You are more than your diagnosis
Perspectives from people navigating life with Arthrogryposis due to muscular dystrophy.
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- Eligibility is confirmed by the study team
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