Living with Angiosarcoma
A rare, aggressive soft tissue cancer that starts in the cells lining blood or lymph vessels, most often in the skin or breast.
Understanding Angiosarcoma
It can occur anywhere in the body. It is most often found in the skin and breast, but may also occur in the liver, spleen, and other deep tissues, and is often already spread when diagnosed. Lymphedema (swelling from lymph fluid buildup) often comes before it, for example after breast cancer treatment. Other links include earlier radiation and exposure to some chemicals. GARD lists the onset as adulthood.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Sarcoma Foundation of America may keep lists of experts for this condition.
Care & treatment
- Care team
- Cancer specialists (oncologists)
- Expert care
- Expert lists: Sarcoma Foundation of America
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Sarcoma Foundation of America and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says it is linked with long-term lymphedema, earlier radiation, and exposure to chemicals such as vinyl chloride, arsenic, and thorium dioxide.
Also known as: angiosarcoma (disease); blood vessel sarcoma; hemangioendothelial sarcoma; hemangioendothelioma, malignant; hemangiosarcoma; hemangiosarcoma, malignant
Patient organizations
- Sarcoma Foundation of AmericaAngiosarcoma · United States
- American Cancer SocietyAngiosarcoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Angiosarcoma.
Explore research for Angiosarcoma
Explore actively recruiting Angiosarcoma studies with HealthSpark.
Find actively recruiting studies for Angiosarcoma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
Powered by HealthSpark, our AI chat helper
I can help you find recruiting Angiosarcoma studies. Enter a ZIP code, address or city below and I'll look within 50 miles.
Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
Get Signals for Angiosarcoma
Stay in the loop with community stories and updates from medical researchers.
Create a living journal that talks back
HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Angiosarcoma experiences more deeply and prepare for better conversations with your doctors and care team.
Your journal is private. Sharing your story publicly is a separate choice, made with Share your story above.