Living with Alzheimer disease without neurofibrillary tangles
A slowly worsening form of dementia linked to chromosome 3, with memory and thinking problems.
Understanding Alzheimer disease without neurofibrillary tangles
It causes memory problems and trouble with thinking. Some people also have features of frontotemporal dementia, which varies from person to person.
Signs & symptoms
Symptoms vary. GARD's summary says they may include:
- Memory problems
- Trouble with thinking (cognitive problems)
- Features of frontotemporal dementia, which vary
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with BrightFocus Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says it has been linked to chromosome 3 and lists autosomal dominant inheritance, so a changed copy of a gene from one parent can be enough.
Also known as: ad15; alzheimer disease 15; alzheimer disease-15; alzheimer disease, type 15; alzheimer's disease 15; alzheimer's disease type 15
Patient organizations
- BrightFocus FoundationAlzheimer disease without neurofibrillary tangles · United States
You are more than your diagnosis
Perspectives from people navigating life with Alzheimer disease without neurofibrillary tangles.
Explore research for Alzheimer disease without neurofibrillary tangles
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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