Living with Allergic bronchopulmonary aspergillosis
An allergic lung reaction to a type of fungus, with wheezing, cough, and low-grade fever, more common in people with asthma or cystic fibrosis.
Understanding Allergic bronchopulmonary aspergillosis
It is more common in people who have asthma or cystic fibrosis. The course of the condition varies from person to person. GARD lists the onset as childhood.
Signs & symptoms
Symptoms vary from person to person. GARD's summary says they may include:
- Wheezing
- Cough with mucus
- Coughing up blood (hemoptysis)
- Low-grade fever
- Feeling generally unwell (malaise)
- Weight loss
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include allergy and immune system specialists and lung and breathing specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Allergy and immune system specialists (allergists / immunologists); Lung and breathing specialists (pulmonologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Allergy & Asthma Network Mothers of Asthmatics
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD describes it as an allergic reaction in the lungs to the fungus Aspergillus fumigatus. It lists autosomal dominant inheritance but doesn't name a gene.
Also known as: abpa; allergic aspergillosis; allergic bronchopulmonary aspergillosis, familial; hinson-pepys disease; pulmonary aspergillus disease
Patient organizations
- Allergy & Asthma Network Mothers of AsthmaticsAllergic bronchopulmonary aspergillosis · United States
You are more than your diagnosis
Perspectives from people navigating life with Allergic bronchopulmonary aspergillosis.
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