Living with Adrenal gland cancer
A rare cancer that starts when cells in the adrenal glands, small glands above each kidney, grow out of control.
Understanding Adrenal gland cancer
The adrenal glands are small glands that sit above each kidney. GARD links some genetic conditions to a higher chance of adrenal tumors and cancer.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Neuroendocrine Tumor Research Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: Neuroendocrine Tumor Research Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Neuroendocrine Tumor Research Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the underlying cause is unknown in most cases. Some genetic conditions, such as Li-Fraumeni syndrome and Von Hippel-Lindau syndrome, are linked to a higher risk.
Also known as: adrenal cancer; adrenal gland malignancy; cancer of adrenal gland; malignant adrenal gland neoplasm; malignant adrenal gland tumor; malignant adrenal gland tumour
Patient organizations
- Neuroendocrine Tumor Research FoundationAdrenal gland cancer · United States
You are more than your diagnosis
Perspectives from people navigating life with Adrenal gland cancer.
Explore research for Adrenal gland cancer
Explore actively recruiting Adrenal gland cancer studies with HealthSpark.
Find actively recruiting studies for Adrenal gland cancer with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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