Living with Adenoma of pancreas
A rare, non-cancerous pancreas tumor made up of cysts, sometimes found by chance because it causes no symptoms.
Understanding Adenoma of pancreas
The cysts are lined with cells rich in glycogen. Some people have no symptoms, and the tumor is found by chance. GARD lists the onset as adulthood and older adulthood.
Signs & symptoms
Symptoms vary from person to person. GARD's summary says they may include:
- Pain in the upper belly
- Weight loss
- Diabetes
- Yellowing of the skin and eyes (jaundice)
- A lump you can feel in the belly
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include cancer specialists and digestive system specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Cancer specialists (oncologists); Digestive system specialists (gastroenterologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Pancreatic Cancer Action Network and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: pancreatic adenoma
Patient organizations
- Pancreatic Cancer Action NetworkAdenoma of pancreas · United States
- American Cancer SocietyPancreatic tumors · United States
You are more than your diagnosis
Perspectives from people navigating life with Adenoma of pancreas.
Explore research for Adenoma of pancreas
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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