Living with Acute zonal occult outer retinopathy
A rare eye condition that causes blind spots, blurred vision, and a loss of side vision, most often in teens and adults.
Understanding Acute zonal occult outer retinopathy
People may see "whitening of vision" or have blurred vision. GARD lists the onset as the teen years and adulthood.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Blurred vision
- Blind spots (scotoma)
- Enlarged blind spot
- Loss of side vision
- Flashes of light (photopsia)
- Nearsightedness (myopia)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include eye disease specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Eye disease specialists (ophthalmologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the underlying cause of AZOOR is currently unknown.
Also known as: aaoor - acute annular occult outer retinopathy; acute annular occult outer retinopathy; acute local occult outer retinopathy; azoor; azoor - acute zonal occult outer retinopathy
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Acute zonal occult outer retinopathy.
Explore research for Acute zonal occult outer retinopathy
Explore actively recruiting Acute zonal occult outer retinopathy studies with HealthSpark.
Find actively recruiting studies for Acute zonal occult outer retinopathy with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
Powered by HealthSpark, our AI chat helper
I can help you find recruiting Acute zonal occult outer retinopathy studies. Enter a ZIP code, address or city below and I'll look within 50 miles.
Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
Get Signals for Acute zonal occult outer retinopathy
Stay in the loop with community stories and updates from medical researchers.
Create a living journal that talks back
HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Acute zonal occult outer retinopathy experiences more deeply and prepare for better conversations with your doctors and care team.
Your journal is private. Sharing your story publicly is a separate choice, made with Share your story above.