Living with Acute posterior multifocal placoid pigment epitheliopathy
An inflammatory eye condition with yellow-white spots at the back of the eye, usually in both eyes, that often clears on its own.
Understanding Acute posterior multifocal placoid pigment epitheliopathy
It affects the retina, the pigmented layer under it, and the choroid, usually in both eyes. It causes several yellow-white spots at the back of the eye. Vision can be significantly affected if the macula is involved. It typically clears on its own in weeks to months.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. The summary describes changes in the back of the eye and in vision.
- Yellow-white spots at the back of the eye
- Reduced sharpness of vision if the macula is involved
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the cause is unknown. About a third of cases appear to develop after a flu-like illness.
Also known as: acute multifocal placoid pigment epitheliopathy; amppe - acute multifocal placoid pigment epitheliopathy; epitheliopathy, acute posterior multifocal placoid pigment; pigment epitheliopathy, disseminated retinitis and retinochoroiditis
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Acute posterior multifocal placoid pigment epitheliopathy.
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