
Living with Acute myeloid leukemia with abnormal bone marrow eosinophils inv(16)(p13q22) or t(16;16)(p13;q22)
A type of acute myeloid leukemia (also called acute myelomonocytic leukemia) that develops in the bone marrow and blood.
Understanding Acute myeloid leukemia with abnormal bone marrow eosinophils inv(16)(p13q22) or t(16;16)(p13;q22)
GARD describes it as acute myelomonocytic leukemia (AMML), one type of acute myeloid leukemia. These are blood cancers in which the number of white blood cells increases rapidly. GARD lists the onset as adulthood.
Signs & symptoms
Symptoms vary from person to person. GARD's summary says they often include:
- Tiredness (fatigue) from low red blood cells (anemia)
- Easy bruising or bleeding from low platelets (thrombocytopenia)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists); Cancer specialists (oncologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Blood Cancer United and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the cause of AMML is currently unknown.
Also known as: acute myeloid leukemia with cbfb::myh11 fusion; acute myeloid leukemia with inv(16)(p13.1q22); acute myeloid leukemia with t(16; 16)(p13.1; q22); acute myelomonocytic leukemia - eosinophilic variant
Patient organizations
- Blood Cancer UnitedBlood or bone marrow disease · United States
- HealthTree FoundationBlood or bone marrow disease · United States
You are more than your diagnosis
Perspectives from people navigating life with Acute myeloid leukemia with abnormal bone marrow eosinophils inv(16)(p13q22) or t(16;16)(p13;q22).
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