Living with Acute monocytic leukemia
A common subtype of acute myeloid leukemia, mostly described in children, with tiredness, pale skin, and fever.
Understanding Acute monocytic leukemia
It is defined by a high share of immature cells called monoblasts in the bone marrow. It can cause a very high white blood cell count, clotting problems, nervous system problems, and leukemia cells in the skin or gums. GARD lists the onset as childhood.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Tiredness (fatigue)
- Low red blood cells (anemia)
- High white blood cell count
- Shortness of breath with activity
- Pale skin
- Dizziness
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists); Cancer specialists (oncologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with American Cancer Society and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet. It notes that a chromosome change called t(9;11) is characteristic of this subtype.
Also known as: acute monoblastic leukaemia; acute monoblastic leukaemia and acute monocytic leukaemia; acute monoblastic leukemia; acute monoblastic leukemia and acute monocytic leukemia; acute monoblastic or monocytic leukemia; acute monoblastic/monocytic leukemia
Patient organizations
- American Cancer SocietyAcute monocytic leukemia · United States
- Blood Cancer UnitedBlood or bone marrow disease · United States
- HealthTree FoundationBlood or bone marrow disease · United States
You are more than your diagnosis
Perspectives from people navigating life with Acute monocytic leukemia.
Explore research for Acute monocytic leukemia
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Find actively recruiting studies for Acute monocytic leukemia with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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