Living with Acute megakaryoblastic leukemia
A rare type of acute myeloid leukemia that mostly occurs in childhood, especially in children with Down syndrome.
Understanding Acute megakaryoblastic leukemia
It is seen especially in children with Down syndrome (DS-AMKL). Acute panmyelosis with myelofibrosis may also be linked to AMKL. GARD lists the onset as childhood and adulthood.
Signs & symptoms
Symptoms vary from person to person. GARD's summary says they may include:
- Irritability
- Weakness
- Dizziness
- Pale skin
- Fever
- Bleeding from the skin or mouth
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists); Cancer specialists (oncologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with American Cancer Society and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: acute m7 myeloid leukaemia; acute m7 myeloid leukemia; acute megakaryoblastic leukaemia (fab type m7); acute megakaryoblastic leukemia (fab type m7); acute megakaryoblastic leukemia, fab m7; acute megakaryoblastic leukemia, morphology
Patient organizations
- American Cancer SocietyAcute megakaryoblastic leukemia · United States
- HealthTree FoundationAcute megakaryoblastic leukemia · United States
- Blood Cancer UnitedBlood or bone marrow disease · United States
You are more than your diagnosis
Perspectives from people navigating life with Acute megakaryoblastic leukemia.
Explore research for Acute megakaryoblastic leukemia
Explore actively recruiting Acute megakaryoblastic leukemia studies with HealthSpark.
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- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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