Living with Acute interstitial pneumonia
A rare, serious lung condition that comes on and gets worse quickly, starting with cough, fever, and shortness of breath.
Understanding Acute interstitial pneumonia
Symptoms develop and progress quickly. Early on, people may have cough, shortness of breath, and fever. This is followed by rapid onset of respiratory failure, and most people need a ventilator to help with breathing. GARD lists the onset as adulthood.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Dry cough
- Trouble breathing (dyspnea)
- Fever
- Tiredness (fatigue)
- Fast breathing (tachypnea)
- Low blood oxygen level (hypoxemia)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include lung and breathing specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Children's Interstitial Lung Disease Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Lung and breathing specialists (pulmonologists)
- Expert care
- Expert lists: Children's Interstitial Lung Disease Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Children's Interstitial Lung Disease Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the underlying cause of AIP is unknown. Most cases happen sporadically, in people with no family history of the condition.
Also known as: accelerated interstitial pneumonia; acute interstitial pneumonitis; aip; hamman rich syndrome; hamman-rich disease; hamman-rich syndrome
Patient organizations
- Children's Interstitial Lung Disease FoundationAcute interstitial pneumonia · United States
You are more than your diagnosis
Perspectives from people navigating life with Acute interstitial pneumonia.
Explore research for Acute interstitial pneumonia
Explore actively recruiting Acute interstitial pneumonia studies with HealthSpark.
Find actively recruiting studies for Acute interstitial pneumonia with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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