Living with Acute febrile mucocutaneous lymph node syndrome
A sudden, short-term illness of infants and young children with long fever, rash, and red eyes, lips, and tongue.
Understanding Acute febrile mucocutaneous lymph node syndrome
Children develop a fever lasting several days, a rash, and swollen lymph nodes in the neck. Without treatment, 15 to 25 percent develop bulging and thinning of the walls of the arteries that supply the heart muscle (coronary artery aneurysms) or other damage to those arteries.
Signs & symptoms
Symptoms vary from child to child. GARD lists these among the most common:
- Fever lasting several days
- Skin rash
- Swollen lymph nodes in the neck
- Red eyes (conjunctivitis)
- Red lips, mouth, and tongue
- Red palms of the hands and soles of the feet
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include autoimmune and inflammatory disease specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Autoimmune Association, Global Autoimmune Institute and Vasculitis Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- autoimmune and inflammatory disease specialists (rheumatologists)
- Expert care
- Expert lists: Autoimmune Association, Global Autoimmune Institute, Vasculitis Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Autoimmune Association and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: acute febrile mcls; acute febrile mucocutaneous lymph node syndrome [mcls]; infantile polyarteritis; infantile polyarteritis nodosa; kawasaki disease; kawasaki syndrome
Patient organizations
- Autoimmune AssociationAcute febrile mucocutaneous lymph node syndrome · United States
- Global Autoimmune InstituteAcute febrile mucocutaneous lymph node syndrome · United States
- Vasculitis FoundationAcute febrile mucocutaneous lymph node syndrome · United States
- Kawasaki Disease FoundationAcute febrile mucocutaneous lymph node syndrome · United States
You are more than your diagnosis
Perspectives from people navigating life with Acute febrile mucocutaneous lymph node syndrome.
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