Living with Acute fatty liver of pregnancy
A rare, serious pregnancy complication in which fat builds up in the liver, usually in the third trimester.
Understanding Acute fatty liver of pregnancy
The fat buildup can lead to liver damage. Symptoms generally begin in the third trimester of pregnancy. GARD lists the onset as adulthood.
Signs & symptoms
Symptoms vary. GARD's summary says they may include:
- Nausea and vomiting that doesn't go away
- Pain in the stomach or upper right belly
- Feeling generally unwell (malaise)
- Yellowing of the skin and eyes (jaundice)
- Headache
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include digestive system specialists, maternal-fetal medicine specialists and women’s reproductive health specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Digestive system specialists (gastroenterologists); Maternal-fetal medicine specialists (pregnancy-related); Women’s reproductive health specialists (obstetricians / gynecologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Preeclampsia Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the cause of AFLP is not well understood, but genetics may play a role.
Also known as: aflp; aflp - acute fatty liver of pregnancy; nonalcoholic fatty liver during pregnancy
Patient organizations
- Preeclampsia FoundationAcute fatty liver of pregnancy · United States
You are more than your diagnosis
Perspectives from people navigating life with Acute fatty liver of pregnancy.
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