Living with Acquired hemophilia
A bleeding disorder in which the immune system attacks a blood clotting protein, causing bruising and bleeding.
Understanding Acquired hemophilia
Signs include prolonged bleeding, frequent nosebleeds, bruising throughout the body, hematomas (solid swellings of clotted blood), blood in the urine, and digestive or urinary tract bleeding. It happens when the immune system attacks and disables a protein that helps blood clot. About half of cases are linked to other conditions such as pregnancy, autoimmune disease, cancer, skin diseases, or reactions to medicines.
Signs & symptoms
GARD doesn't list a symptom list for this condition yet. The summary describes these features:
- Prolonged bleeding
- Frequent nosebleeds
- Bruising throughout the body
- Hematomas (solid swellings of blood)
- Blood in the urine
- Digestive or urinary tract bleeding
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Global Autoimmune Institute may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: Global Autoimmune Institute
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Global Autoimmune Institute and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
The body's immune system attacks and disables a protein that helps blood clot. About half of cases are linked to pregnancy, autoimmune disease, cancer, skin diseases, or allergic reactions to medicines.
Also known as: hemophilia, acquired
Patient organizations
- Global Autoimmune InstituteAcquired hemophilia · United States
- National Bleeding Disorders FoundationAcquired hemophilia · United States
You are more than your diagnosis
Perspectives from people navigating life with Acquired hemophilia.
Explore research for Acquired hemophilia
Explore actively recruiting Acquired hemophilia studies with HealthSpark.
Find actively recruiting studies for Acquired hemophilia with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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