Living with Acquired factor VIII deficiency disease
A bleeding disorder, also called acquired hemophilia A, in which the immune system attacks a blood clotting protein.
Understanding Acquired factor VIII deficiency disease
Signs include prolonged bleeding, frequent nosebleeds, bruising, hematomas (solid swellings of clotted blood), blood in the urine, and bleeding in the digestive or urinary tract. It happens when the immune system attacks coagulation factor VIII. About half of cases are linked to other conditions such as pregnancy, autoimmune disease, cancer, skin diseases, or reactions to medicines. GARD lists onset as a variety of ages.
Signs & symptoms
GARD doesn't list a symptom list for this condition yet. The summary describes these features:
- Prolonged bleeding
- Frequent nosebleeds
- Bruising throughout the body
- Hematomas (solid swellings of blood)
- Blood in the urine
- Digestive or urinary tract bleeding
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with National Bleeding Disorders Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
The immune system attacks and disables clotting factor VIII. About half of cases are linked to pregnancy, autoimmune disease, cancer, skin diseases, or reactions to medicines.
Also known as: acquired f8 deficiency; acquired factor viii deficiency; acquired hemophilia a; aha
Patient organizations
- National Bleeding Disorders FoundationAcquired factor VIII deficiency disease · United States
You are more than your diagnosis
Perspectives from people navigating life with Acquired factor VIII deficiency disease.
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