Living with Acquired adult-onset immunodeficiency
An immune condition in adults in which the body makes antibodies against a protein it needs, leading to widespread infections.
Understanding Acquired adult-onset immunodeficiency
It makes people susceptible to infections that spread through the body, caused by organisms that usually affect only people with weak immune systems. It is mostly reported in previously healthy people of Southeast Asian background. Symptoms depend on which infections are present. GARD lists onset as adult.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include allergy and immune system specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Immune Deficiency Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Allergy and immune system specialists (allergists / immunologists)
- Expert care
- Expert lists: Immune Deficiency Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Immune Deficiency Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
The cause is unclear, but genetic factors are suspected, and certain HLA genes may be linked. Some think an infection may first trigger the autoantibodies and repeated infections increase their activity.
Also known as: acquired immunodeficiency of adults; adult acquired immunodeficiency; adult-onset immunodeficiency with acquired anti-interferon-gamma autoantibodies; adult-onset immunodeficiency with anti-interferon-gamma autoantibodies
Patient organizations
- Immune Deficiency FoundationAcquired adult-onset immunodeficiency · United States
You are more than your diagnosis
Perspectives from people navigating life with Acquired adult-onset immunodeficiency.
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