Living with Acoustic neuroma
A noncancerous brain tumor on the nerve for hearing.
Understanding Acoustic neuroma
It begins in Schwann cells, which make the myelin that protects the acoustic nerve, the nerve of hearing. GARD's record gives few other details.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists, cancer specialists and ear, nose, and throat specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Acoustic Neuroma Association may keep lists of experts for this condition.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists); Cancer specialists (oncologists); Ear, nose, and throat specialists (otolaryngologists)
- Expert care
- Expert lists: Acoustic Neuroma Association
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Acoustic Neuroma Association and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet. The tumor starts in Schwann cells on the acoustic nerve.
Also known as: acoustic neurilemmoma; acoustic neurilemoma; acoustic neurinoma; acoustic schwannoma; an - acoustic neuroma; neurilemoma, acoustic
Patient organizations
- Acoustic Neuroma AssociationAcoustic neuroma · United States
- Facial Paralysis & Bell's Palsy FoundationAcoustic neuroma · United States
- Support for People with Oral and Head and Neck CancerAcoustic neuroma · United States
You are more than your diagnosis
Perspectives from people navigating life with Acoustic neuroma.
Explore research for Acoustic neuroma
Explore actively recruiting Acoustic neuroma studies with HealthSpark.
Find actively recruiting studies for Acoustic neuroma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
Powered by HealthSpark, our AI chat helper
I can help you find recruiting Acoustic neuroma studies. Enter a ZIP code, address or city below and I'll look within 50 miles.
Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
Get Signals for Acoustic neuroma
Stay in the loop with community stories and updates from medical researchers.
Create a living journal that talks back
HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Acoustic neuroma experiences more deeply and prepare for better conversations with your doctors and care team.
Your journal is private. Sharing your story publicly is a separate choice, made with Share your story above.