Rare Tips

72 articles

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  Rare Tips

  9 Things to Know After Diagnosis

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  Rare Tips

  Organization Spotlight: Remember the Girls

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  Rare Tips

  Nutrition and IgAN (IgA Nephropathy): A Practical, Evidence-Based Guide

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  Rare Tips

  The Invisible Job: What Caregiving for a Rare Disease Really Looks Like

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  Rare Tips

  Gluten-Free Doesn't Always Mean Healthy: The Uncomfortable Truth Nobody Tells Celiacs

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  Rare Tips

  Living with Celiac Disease: What They Don't Tell You at Diagnosis

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  Rare Tips

  Life Hacks for Mobility Challenges: Bathroom Safety Tips and Tricks

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  Rare Tips

  Life Hacks for Mobility Challenges: Dress with Success

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  Rare Tips

  Life Hacks for Mobility Challenges: Get Smart in the Home

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  Rare Tips

  Life Hacks for Mobility Challenges: Tips for the Kitchen

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  Rare Tips

  Life Hacks for Mobility Challenges: Pool Noodles to the Rescue

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  Rare Tips

  Empowering Patients: The Role of Education in Rare Disease Treatment Plans

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  Rare Tips

  Can Mind-Body Exercises Help with FSGS? See What the Research Says

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  Rare Tips

  Can Yoga Really Help with FSGS? See What the Research Says

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  Rare Tips

  Three Ways to Get Access to High-Cost Treatments

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  Rare Tips

  How Know Rare is Celebrating Pride Month

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  Rare Tips

  Embracing Risks: How Taking Chances Enhances Life with a Rare Disease

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  Rare Tips

  The Surprising Link Between Exercise and Myositis

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  Rare Tips

  Understanding Congenital Myasthenic Syndromes (CMS) vs. Myasthenia Gravis

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  Rare Tips

  What You Need to Know about CMS and Clinical Trials

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  Rare Tips

  Needle Phobia in Children: What It Is, What It Isn’t, and How to Help

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  Rare Tips

  The Link Between Oral Wellness and Your Overall Health

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  Rare Tips

  Four Empowering Ways to Mark Rare Disease Month

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  Rare Tips

  Teens, Substance Use, and Rare Disease

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  Rare Tips

  Rare Disease News Roundup

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  Rare Tips

  Safeguard Your Holidays: The Importance of Flu Protection

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  Rare Tips

  Expert Advice on Managing Nutrition for Rare Disease Patients: Insights from a Metabolic Dietitian

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  Rare Tips

  Know Rare Tips: How to Support a Friend Who’s Been Diagnosed With a Rare Disease

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  Rare Tips

  How Much Do You Know About Your Myositis?

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  Rare Tips

  What is Autoimmune Hemolytic Anemia (AIHA)?

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  Rare Tips

  Diagnosis and Symptoms of Autoimmune Hemolytic Anemia (AIHA)

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  Rare Tips

  Navigating Adolescence with Rare Disease

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  Rare Tips

  6 Tips to Help Fight Fatigue in Rare Disease

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  Rare Tips

  How to Manage Autoimmune Hemolytic Anemia

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  Rare Tips

  A Celebration of Three Extraordinary Black Women in Healthcare

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  Rare Tips

  Living With Myasthenia Gravis: 10 Things to Know

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  Rare Tips

  Myositis: Causes, Symptoms, and Classification

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  Rare Tips

  What is IVIg (Intravenous Immunoglobin) and How Does it Work?

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  Rare Tips

  Myasthenia Gravis: Questions and Answers

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  Rare Tips

  8 Common Triggers for Myasthenia Gravis Flare-Ups

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  Rare Tips

  Healthy for the Holidays

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  Rare Tips

  Tips for Managing a Rare Blistering Disease

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  Rare Tips

  Embrace your Rare Truth: Becky's Rare Tip on Finding the Right Support

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  Rare Tips

  A Tiger Mom’s Guide for Sudden Hospitalization for a Child with a Rare Disease

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  Rare Tips

  TargetCancer Foundation’s 5 Tips for Caregivers

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  Rare Tips

  What Every Rare Cancer Patient Should Know

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  Rare Tips

  "Traveling Different," by Dawn M. Barclay: A New Book for Parents of the Anxious, the Inflexible, and the Neurodiverse

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  Rare Tips

  In Case of Emergency: Unleash the Power in Your Pocket

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  Rare Tips

  Protect Yourself From the Sun if You Have Bullous Pemphigoid (BP)

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  Rare Tips

  Can What You Eat Trigger Bullous Pemphigoid, a Rare Skin Condition?

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  Rare Tips

  5 Things to Pack in your Emotional Toolkit

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  Rare Tips

  Plunging is Easy, Raising Money is Hard: Lessons to Help Other Rare Disease Fundraising Organizations

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  Rare Tips

  Can Mind-Body Exercises Help with IgA Nephropathy? See What the Research Says

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  Rare Tips

  Can Yoga Really Help with IgAN? See What the Research Says

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  Rare Tips

  Four Things to Know About Rare Disease Patient Registries

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  Rare Tips

  5 Ways Employers Can Support Rare Disease Caregivers in the Workplace

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  Rare Tips

  NAC and Global Genes Publish New Guidebook for Caregivers of Children with Rare Illnesses

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  Rare Tips

  10 Books for Families of Children with Rare Disease

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  Rare Tips

  Planning for Pregnancy When You or Your Child has a Rare Genetic Disease

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  Rare Tips

  Ask a Genetic Counselor: Common Questions about Prader-WiIli Syndrome

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  Rare Tips

  12 Impactful Books for People Facing Rare Disease

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  Rare Tips

  Five Things to Know about Genetic Counseling and Rare Genetic Disease

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  Rare Tips

  Three Tools for Finding an Expert in Your Rare Disease

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  Rare Tips

  Know Rare Launches Its New Telehealth Solution for People With Rare Disease

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  Rare Tips

  7 Tips For Finding a Clinical Trial for Your Rare Disease

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  Rare Tips

  Creating a More Patient-Centric Future: Lessons Learned at the 2021 JP Morgan Health Care Conference

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  Rare Tips

  Updates from ASH 2020: Advances in the Understanding and Treatment of Blood Diseases

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  Rare Tips

  Adaptive Clothing: Dress for Less Stress

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  Rare Tips

  Know More About: The Diagnosis of Myasthenia Gravis

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  Rare Tips

  Preparing for the Holidays with a Rare Disease in the Time of Covid-19

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  Rare Tips

  Plasmapheresis: Procedure Information & Potential Complications

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  Rare Tips

  How to Reduce Anxiety Before Medical Procedures or Treatments

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