Topic

Rare Leaders

15 articles

Rare Leaders
Dr. David Fajgenbaum: How one doctor turned hope into action to treat his own rare disease
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Rare Leaders
Improving Access to Specialized Care For Myositis
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Rare Leaders
Changemakers in Rare: Becca Salky
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Rare Leaders
Offering Community Care and Emotional Care to Rare Disease Families
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Rare Leaders
Beneath the Surface: How dermatologist Prince Adotama, MD, is changing the way we think about rare disease and our skin
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Rare Leaders
Providing a Medical Home
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Rare Leaders
Changemaker in Rare: Becky Tilley
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Rare Leaders
Genetic Testing Explained: Dr. Joshua Owens is changing the way families think about genetics for rare diseases
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Rare Leaders
Changemaker in Rare: Anne-Marie McIntyre
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Rare Leaders
Changemaker in Rare: Pushpa Narayanaswami
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Rare Leaders
Changemaker in Rare: Jeremy E. Lankford, M.D.
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Rare Leaders
Changemaker in Rare: Mary Kay Koenig, M.D.
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Rare Leaders
Bob Coughlin: Boldly Chasing Cures
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Rare Leaders
Changemaker in Propionic and Methylmalonic Acidemia: Kimberly Chapman, MD, PhD
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Rare Leaders
Wendy White: Centering Patient Voices and Innovation in Rare Disease Care
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