News

38 articles

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  News

  Which is the worst time of the year for people with ITP?

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  A Danon Disease Study Wins Top Research Award

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  News in ITP: Studying Fatigue in Long-Term ITP

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  Research in Antibody-Caused Diseases: Seronegative NMOSD May Be MOG Antibody Disease

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  Kidney Week 2025: New Research in Preserving Kidney Function

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  Danon Disease and Eye Problems

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  Understanding Fatigue in IgAN: Causes and Management

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  How ITP Patients and Doctors Perceive Fatigue Differently — and How Journaling and Setting Goals Can Help

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  IgA Nephropathy Patients With Family History Face Higher Kidney Risks

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  How IgA Nephropathy Is Treated: A Look at Today’s Medications and Tomorrow’s Breakthroughs

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  Recent survey reveals new findings about symptoms of pain and fatigue in people living with IgAN

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  Promising News from a Clinical Study in Becker Muscular Dystrophy

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  Latest News in Sickle Cell Disease

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  Perceptions of Pain: Research Shows It’s Personal

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  Why Men's Health Week Matters for the Rare Community

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  Mark Your Calendar for TSF's Atlanta Patient Day

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  May Is Myositis Awareness Month

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  Why 2024 Is Already an Encouraging Year for the Rare Disease Community

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  National Tay-Sachs & Allied Diseases Association Hosts First of Its Kind Drug Development Meeting for GM2

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  Edgewise Therapeutics: New Treatments for Duchenne and Becker Muscular Dystrophy

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  Clinical Trial Paves the Way for a Groundbreaking New Myasthenia Gravis Treatment

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  Understanding COVID-19 and Myositis: Key Insights into Muscle Inflammation and Pain

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  A personal approach to the development of new treatments in rare disease

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  New Way to Study the Mental Capabilities of Children Over 12 With PA or MMA

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  Famously Rare: Celebrities Diagnosed With Rare Diseases

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  DNA Today Podcast: Propionic and Methylmalonic Acidemia with HemoShear Therapeutics

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  Research in Action: Measuring Patient-Reported Outcomes in FSGS

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  A Rare Disease True Crime Story

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  Effects of a 6-Month Yoga Program on Kidney Function and Quality of Life

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  DNA Today Podcast: Mitochondrial Disorders with Alejandro Dorenbaum

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  Confronting Racial and Ethnic Disparities in Rare Disease Care

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  One Bad Take: A Daily Newspaper Misses the Target on Prenatal Testing

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  Primary Mitochondrial Myopathies: Researchers Explore New Pathways for Treatment

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  Rare Disease Diversity Coalition Formed To End Racial Disparities In Rare Disease Diagnosis, Research, And Treatment

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  Women Who Broke Barriers in Rare Disease

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  Fusion Oncogene: When Two Genes Come Together, They May Cause Tumors to Grow

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  Rare Cancer Research: Leading the Way to the Development of New Cancer Therapies

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  Advancements in Rare Disease Treatment: Progress and Future Outlook

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