The Loneliness of a Clinical Trial

“I didn’t know it would feel so lonely being in a clinical trial” - Here’s one of the many lessons learned by Rare Human Lindsay, who joined a clinical trial earlier this year for her myositis.

Lindsay talks about how hard it is not to have a community to turn to, especially when there are only a few patients with her rare disease who have experienced the same treatment she just went through.

Navigating rare disease care can be exceptionally complex. If you are interested in learning more about the latest research opportunities in your rare disease, you can contact the Know Rare Support Team at support@knowrare.com.