A Rare Mom's Take on Living with Refractory Seizures

Rare Mom Samantha Deschenes gives us an unfiltered look into her unique parenthood journey. From adjusting to the “new normal” of witnessing her child’s refractory seizures to the unexpected challenges of professional care, she opens up about the various struggles and triumphs she faces every day.

Diagnosed with a rare disease? Connect with Know Rare at any time by emailing support@knowrare.com.