Real Stories Featured Share your Rare: Sierra Domb Owning What Makes Us Rare Understanding Epidermolysis Bullosa: A Journey of Pain and Perseverance Living Your Dreams When Living with Rare Disease: How Chris Anselmo Learned to Follow His Heart Share your Rare: Edward Gent On Family, Fortitude, and Forces of Nature Lindsay’s Story: What It’s Like to Live with Myositis Defining the Disease: The MOG Project Visiting the Disease: Orit’s Story Avery's Remarkable Rare Path: A One-in-a-Million Diagnostic Journey What is a Child Life Specialist? We All Have a Story to Tell Role Models Light the Way Hello, Adversity: Introducing Chris Anselmo My Unexpected and Powerful Clinical Trial Journey Thriving Rare Share your Rare: Krystel El Koussa Share your Rare: Alice's Story A Myasthenia Gravis Health Story: Cate’s formula for remission despite life’s stress Rare Mom Health Story: Irritability - a Symptom of Being a Rare Caregiver Lindsay's Story: A Myasthenia Gravis Journey from Despair to Hope What It’s Like To Live With ITP: Laura’s Story What It’s Like To Live With ITP: Joan’s Story A Day at a Time: Our Journey with Rare Disease and Relentless Seizures Share Your Rare: Bryan Kelly Moving Mountains: Advocating for My Son’s Individual Education and Health Plans Katie McCurdy: How a Woman with MG Helps Rare Patients Tell Complex Stories Living with Greig Cephalopolysyndactyly Syndrome Living with FSGS The Complicated Grief of Losing Someone with a Rare Disease
