The Latest Research in Danon Disease
Hypertorphic Cardiomyopathy may have a genetic cause - Danon disease, a rare x-linked genetic condition. Little is understood about how the disease progresses over time, especially how it leads to severe, life-threatening cardiac complications.
Two international experts in Danon disease discuss why research is urgently needed, and how ongoing studies aim to change the future for patients and families.
Barry Greenberg, MD
University of California
San Diego (CA), US
Cordul Wolf, MD
Deutches Herzzentrum
Munich, Germany
Moderated by Kira Dineen,
certified Genetic Counselor, DNA Today podcast
Playlist
About Danon disease
Presentation, diagnosis, and cause
Discussion: Dr. Greenberg, Dr. Wolf
Natural History Study in Danon Disease
Purpose, eligibility criteria
Dr. Wolf
Gene Therapy Study in Danon Disease
Purpose, eligiblity criteria
Dr. Greenberg