Know Rare Team 5/31/24 Know Rare Team 5/31/24

Know Rare Connect: Living With Myositis

Journalist Lindsay Guentzel describes navigating a diagnostic odyssey and how she manages day-to-day life with myositis in an impactful webinar.

$A Rare Mom's Take on Living with Refractory Seizures$

Know Rare Team 10/10/23 Know Rare Team 10/10/23

A Rare Mom's Take on Living with Refractory Seizures

Rare mom Samantha Deschenes gives us an unfiltered look into life as a parent to a child with refractory seizures.

Know Rare Team 10/10/23 Know Rare Team 10/10/23

Journaling Your Journey

Join Know Rare in a heartfelt exploration of the profound impact of journaling on the lives of those touched by rare diseases. In the “Know Rare Connect: Journaling Your Journey” webinar.

Know Rare Team 10/10/23 Know Rare Team 10/10/23

Connect with Members of the Know Rare Team

In this recap of our first live Know Rare Connect event, we meet some incredible members of the Know Rare team and hear their stories.