Three Ways to Get Access to High-Cost Treatments
If you are coming across high copays and struggling to afford your treatment plan, here are a few options that may help you reduce the costs of your medications.
The Surprising Link Between Exercise and Myositis
How physical activity impacts this rare condition—and why you need to know about it.
How is Congenital Myasthenic Syndrome (CMS) Different from Myasthenia Gravis (MG)?
All about Congenital Myasthenic Syndromes at a glance
What You Need to Know about CMS and Clinical Trials
Get essential information about congenital myasthenic syndromes (CMS) and why clinical trials are a crucial element in the path towards better treatment for the condition.
Needle Phobia in Children: What It Is, What It Isn’t, and How to Help
Get the basics on needle anxiety, one of the top medical fears among children, and discover tips to manage it.
The Link Between Oral Wellness and Your Overall Health
On World Oral Health Day (March 20), we’re taking a closer look at what your oral health can tell you about your well-being.
Four Empowering Ways to Mark Rare Disease Month
As we step into Rare Disease Month this February, it's an opportune time to celebrate resilience, foster connection, and empower ourselves within the rare disease community.
Teens, Substance Use, and Rare Disease
An expert on adolescent health shares tips for families navigating substance use concerns alongside rare disease.
Safeguard Your Holidays: The Importance of Flu Protection
It’s National Influenza Vaccination Week: find out why the flu vaccine should be a critical part of your winter to-do list.
Expert Advice on Managing Nutrition for Rare Disease Patients: Insights from a Metabolic Dietitian
Special diets can be a challenging but necessary part of rare disease treatment. Here, a leading dietician offers advice for supporting nutrition from birth through adulthood.