How do weather changes affect your rare disease?

Extreme heat. Extreme cold. High humidity. Storms. Days of rain. Most discussions about climate are about how it will affect the future, but for people with rare diseases, extreme weather is affecting us now.

Many people with rare diseases experience increases in pain on days with intense heat or cold. Take the survey below, and share how weather impacts your rare condition. We will compile the results, without identifying individuals, and share them with the community.

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